Maria Deysi's Story...


Maria Deysi Aguilar was born on March 15th, 2003, in Okinawa, Bolivia (in the department, or state, of Santa Cruz). She is her mother's third child and only girl. When she was three months old, her mother left their dwelling (a wooden structure with a tarp roof) to look for food, leaving Deysi and her two older brothers alone. As it was a cold night, she had left the embers of their cooking fire burning. A stray spark made it up to the tarp, which caught fire and began to melt and drip onto the dirt floor of their home, where Deysi was sleeping, wrapped in a blanket. The only exposed parts of her body (her face and hands) were severely burned by the burning, liquid plastic of the tarp. By the grace of God, Deysi and her mother made it to the city of Santa Cruz (a two-hour drive) and Deysi spent four months in the burn center at the city's childrens hospital. After two skin grafts and many weeks of painful recovery, she was finally released, but after realizing that she was unable to adequately care for her daughter, Deysi's mother chose to place her in the girls orphanage "Hogar Sagrado Corazon" (Sacred Heart Home) in Montero, shortly before Deysi's second birthday.

How is she now?


Deysi is now 10 years old and will start fifth grade in March. She still lives in the childrens home "Hogar Sagrado Corazon" and is well loved by all. She has a sweet disposition and a quick, easy smile. She is doing well in school and is a hard worker, not easily frustrated and generally well behaved. She has been blessed by more frequent visits from her mother and brothers recently and continues to rekindle the bond that she has with them.

Her skin is completely healed (and has been for some time now) but the effects of the burn are still very noticeable. Deysi has never been self-conscious about her differences, but is approaching an age where those differences will start to matter more. In 2014, thanks to the generosity of Shriner's Children’s Hospital in Boston, and the skill and dedication of their professionals, she has undergone a second surgical procedure (on January 27th). This most recent surgery removed the nail bed of the thickened fingernail on her left hand and grafted skin from her leg onto the back of her left hand, allowing more movement in her fingers and replacing a portion of the scarred skin with her own healthy skin. She has also undergone the first of a series of laser procedures to gradually lighten the areas of (darker) grafted skin on her face. We are so grateful to Shriner's Hospital and to all those who have contributed to allow this second trip to become a reality!

Friday, March 25, 2011

Gone fishin'...

Or, at least, gone to "see the fishies"! 

We had a fun day yesterday...we started with some school...

  Working with syllable cards--trying to make 10 words...

 There you are, folks--ten good words!  

Then, in the afternoon, we went to the New England Aquarium!  
Lots of fishies and even more penguins!

 Playing with the little fish-shaped light that the penguins chase...we spent a lot of time on this one!

 With a tank of tropical fish...

 Another pretty penguin statue...

 Pretty Deysi and pretty Boston

 Checkin' out the boats

 Did I mention we LOVE dolphins?!  
(Good thing they're not an every day sight or I'm sure I'd be taking lots of pictures of them, too!) :)

 Right before the IMAX film "Whales and Dolphins"--it was a little scary, but we loved it!

Then, this morning, we went to visit Fr. O'Leary up at Tufts and we participated in a midday Mass where Deysi received the Annointing of the Sick in preparation for the surgery on Monday.  We had a nice visit up at Tufts and Fr. O'Leary gave Deysi a real metal slinky--hours of entertainment!!

In the afternoon we went back to Shriner's to have Deysi's TB test read (it was negative--we figured as much) and then had a tasty dinner at Nick's up by Tufts.

Tomorrow we'll head down to Westport for a visit to the beach and some dear friends and will be back to Arlington tomorrow night. 

1 comment:

  1. Deysi, me encanta leer las historias de ti, porque puedo imaginar todo que tu haces - tambien cuando leo las historias, siempre escucho tu risa. :) Ojala que tu estas disfrutando tu adventura con la Madre Anita y con tus nuevos amigos! Te extranamos aqui, pero todos de nosotros estamos bien. No te preocupes de lunes, porque estas en manos buenos. Siempre estas en mis oraciones (especialmente pensare en ti todo el dia lunes). Con todo mi corazon, Melia